Two Steps Forward, One Step Back

Emma has been back at Mission for a week and it has been up and down. The nurses helped us take family Christmas photos on Thursday. It was a lot of fun to take Emma out into the hall by the Christmas tree. We transferred back to Mission so that Emma could learn how to feed. Today they will finally do a swallow study to make sure that when she swallows that it goes to all the right places. Since it has taken a week to get to this point, it is looking doubtful that she will be home for Christmas. In addition, on Saturday morning Emma came down with a 102 fever. They ran all sorts of blood tests and she has a few infections. She has an infection in her trach and in her blood. As a precaution they removed her central IV line last night. They will most likely put a new central IV line in later this week. It has been nice being back at Mission. All of our old nurses have stopped by and visited. None of them can believe how big she has gotten. Please pray that Emma recovers quickly from her infections and that she can learn to feed soon.