Merry Christmas

Emma is starting to feel better with all of the antibiotics. She turned 5 months old on Friday and is very active right now. She is constantly looking around the room and cannot sit still. On Friday evening she had her latest operation. This time they put in her feeding tube in her tummy and put a new broviac IV line in her leg. The feeding tube is on the left side of her tummy and goes directly into her stomach. The broviac allows the nurses to give her antibiotics and draw blood without having to stick her with a needle every day. She started to feed through the G tube yesterday and it is working well. While we are disappointed that Emma needed another incision and hole in her body, it should help her feed better. They are also doing a swallow study right now to make sure that everything goes where it is supposed to. Emma has been on antibiotics for a week now and needs to remain on them for a total of 35 days. After that, we may be able to bring her home. They are also talking about the possibility of sending her to a step down facility before sending her home. She would be in a home like environment, but would have 24 hour care. It would also allow us to bring her home on the weekends. We hopefully won’t need this, but Alissa is meeting with a representative today to learn more about it. Have a wonderful Christmas.