Monday, October 30, 2006

Back at CHOC

On Friday night we took Emma back to the hospital. During the day she had thrown up 12 times and couldn't keep down a syringe of water. Alissa has not left her side in 3 days. In the past we could leave Emma when she went to sleep, but now she is aware of her surroundings and wants mommy whenever she is awake. Yesterday she was finally able to tolerate some pedialite in addition to the IV fluids. She has pseudomonis again which is some sort of infection or bacteria from her trach.

Wednesday, October 18, 2006

Last Weekend

Last weekend we took Emma to Chance's 6th birthday party at a local park. She had a lot of fun. It was a pirate themed party that included a pirate ship bounce house. We got to catch up with a lot of people from Healthbridge. Emma went on the swings for the first time and really loved it. . We also took Emma to the pumpkin patch for a photo op. Here are some pictures from the day.

Thursday, October 12, 2006

15 Months

Emma turns 15 months old on Monday. I cannot believe how fast it has gone. She is progressing well, but we wish she would gain weight faster. She loves to play peek-a-boo, blow us kisses, read books, and watch Playhouse Disney. We wish she could have joined us at the CHOC Walk on Sunday, but it would have been too much for her. It was a lot of fun, but you felt like a heard of cattle being driven from one location to the next. They estimate that there were 16,000 walkers. We ran into a lot of people we knew, including our friend Chance from Healthbridge. He was recently adopted and lives near our house. We will be attending his birthday party this Saturday. This month we finally started to receive home nursing for Emma. We qualify for 20 hours a day, 7 days a week, but there are not enough nurses to staff it. We are leaving weekends as optional in case we need a break. Alissa has benefited the most from the home nursing as she has been able to get uninterrupted sleep a few nights a week.

Thursday, October 05, 2006

Emma's Entourage

This Sunday at 7:00 am, a group of 20 will be participating in the CHOC Walk as Emma's Entourage. As a group we raised just under $4000 for CHOC Hospital. It should be an exciting event. We will post some pictures from the walk on Monday.