Tuesday, June 20, 2006
Emma is still at CHOC. We thought she was coming home yesterday, but she is still having some issues of throwing up. There is talk again of a fundo, but we really do not want it. At this point we are unsure of when she will get to come home again. Over the weekend, our friends at CHOC not only took care of Emma, but also Alissa and I. Our angel Carol in particular insisted that we spend some time together away from the hospital. We were able to go to the movies and lunch without having to worry if Emma was going to be OK. It was very much needed to have a bit of normalcy. On Father's Day, we went to WCC for a pancake breakfast, classic car show, and to see former SF 49er Wendell Tyler speak. Afterwards, we had lunch over at my parent's house. When we finally arrived at CHOC, Emma (with the help of Jen and others) had made me a small scrapbook and framed photo gallery for my desk at work. It was very special. CHOC continues to be more like a family than a hospital. For that, we are extremely grateful.
Posted by Mark at 10:33 AM
Monday, June 12, 2006
Emma went back to her second home at CHOC Saturday. She is unable to keep her feedings down again, so they admitted her to the Pediatrics floor at CHOC. We have now stayed in every part of CHOC at Mission except for the short stay unit. Yesterday we spent about 3 hours in the radiology lab doing an upper GI study to see if her digestive system is working properly. They filled her stomach with barium and then watched it go through her system on the X-Rays. Last night we got the results back and thankfully there is no blockage in her intestines. They also took some cultures from her trach area and they came back positive. She has an infection of some kind, but they could not treat her with antibiotics until they narrowed it down. She was so miserable yesterday. Hopefully we will have a result soon and be able to start treating her with the right antibiotics.
Posted by Mark at 4:30 PM