Thursday, December 01, 2005

Emma News 12-01-05

Good Morning,

Emma is doing well and making good progress. She has been working with an occupational therapist for the past week on feeding by bottle. She does well sometimes, but is uninterested at other times. She has also been spending more time off of the ventilator. Yesterday she was off the ventilator all day until midnight and then she was only on the vent while she slept through the night. She has been throwing up a bit this past week and we are not sure why. Overall, we are very pleased with her progress. She has lost some weight, but it was mostly fluids. She is around 6 pounds 10 ounces right now. We have spoken with some of the nurses at Mission and we are not so anxious to get back there now. They have plenty of beds, but not enough nurses. I have a feeling we will just stay at CHOC in Orange until she comes home. They still don’t have a time frame for Emma going home, but I suspect it will be in January sometime. We were able to spend a lot of quality time with Emma and the nurses over the Thanksgiving holiday. We helped decorate the PICU for Christmas. We spent about 15 – 20 hours cutting out decorations. It was nice to be able to give back a little bit.

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