Weekend Update

Emma is having a hard time adjusting to life on the trach. The doctors are trying to keep her very still because when she moves, she has more spells. Saturday was a very rough day as she consistently started having low blood oxygen levels. Her heart rate was dropping as well. The pulmonary specialist ordered her a custom trach just in case. In addition, Emma has been agitated because she has pneumonia. Alissa and I were feeling very discouraged because we though that she was going to be getting better at CHOC, not worse. The doctors assured us that it is not unusual to see this when a baby first gets a trach. We just pray that this part of Emma’s treatment passes soon. It has been the roughest part yet. Emma has also been having a hard time digesting her food and they have cut back on her feeds. Since Emma is not recovering quickly from the trach operation, there is no reason to transfer her back to CHOC Mission since she will be having her heart surgery in 2 to 4 weeks. That means another month or more living out of our suitcases. We went and visited our nurses and doctors at Mission yesterday afternoon for some love and support. It was very nice to see our extended family. Who would have ever thought that we would actually miss the hospital? Please continue to pray for Emma’s healing and for our stress levels.