Here's The Latest...

Our apologies for the lag in updates, but with the RSV season in full swing, we have been staying home and trying to keep busy. Not much is going on, so here's the rundown.

Emma has had several follow up Dr. visits and so far she is doing well. She weighs a bit over 17 pounds and is 28.5 in tall. We are still waiting for her to get to a minimum of 20 pounds before the Doctor will consider decanulating Emma's trach. In early March, Emma will have a Rigid Bronchoscpoy to remove scar tissue from her trachea and have her eye duct irrigated so it will drain properly. Yea! No more teary left eye. Please keep us in your prayers as these procedures require Emma to be under anesthesia while in the operating room.

Our dear friend Melinda's nephew has graciously given Emma the walker he has out grown, which she desperately needs. We are so excited for this, it may need some modification to for it to fit her, but we can't wait to see our girl standing up right and walking with this assistance.

Emma is also becoming more and more verbal. She had found her tiny voice behind her trach and is working hard with her Speech Therapist to form her lips and mouth to say words. This is still a challenge so, she interchanges signs with the few words she can say. We're so proud, our girl is BRILLIANT! Emma is starting to be able to say 2 syllable words like: Momma, Dadda, Ah-Pa (Papa), uh-oh, "ah-ha!" (thanks to the Piglet Movie). She can also say Up-Mom, no, yeah, & nan too. Our house is not yet noisey but it is getting there.

Emma has grown quite fond / obsessed with the Winnie the Pooh Series. She loves to sit and watch the movies while holding her stuffed buddies from each movie. She is so fun to watch as she interacts with the characters. When special songs come on she dances, wiggles and marches with her legs to the the music. We love seeing her engaged with activities she enjoys. She has developed quite the memory too. She often reminds us about things we've said we're going to do or that she wants to do. It's so wonderful that she can communicate with us. Emma often shows us what she wants at the moment or as she remembers doing things hours or days after the events. She still asks to go see Santa and the Christmas Tree at Fashion Island when we take her to the train.

Below are some recent pictures from the last month.

Calling Dr. Emma

Emma loves to pretend

When Mark was sick we all wore masks to keep the germs in check.

Emma thought this was a great game.

laughing & playing on a rainy day

Another boo -boo on Emma's Chin-ey Chin Chin...

More evidence of how active our girl really is.

Emma loves Piglet...She holds him tight when she's watching PIGLET'S BIG MOVIE...
It's so cute watching her give Piglet loves. What a sweet girl she is...